Co-creating Inclusive and Non-ableist Public Health Policies With Persons With Disabilities; Comment on “How Did Governments Address the Needs of People With Disabilities During the COVID-19 Pandemic? An Analysis of 14 Countries’ Policies Based on the UN Convention on the Rights of Persons With Disabilities”

Document Type : Commentary

Author

Department of Occupational Therapy, New York University, New York City, NY, USA

Abstract

In their study, Shikako et al analyzed how national policies during the COVID-19 pandemic either supported or neglected the rights of persons with disabilities, aiming to inform the development of inclusive policies that align with the United Nations Convention on the Rights of Persons with Disabilities (UNCRPD). They concluded that the differences in policies across countries during the COVID-19 pandemic indicate a need for greater alignment and standardization of policy responses for individuals with disabilities. While the study revealed disparities across countries and underscored the importance of disability-inclusive policy, this commentary provides actionable insights to guide governments in creating equitable policies that uphold the rights of persons with disabilities during crises and beyond. Specific recommendations in accordance with the UNCRPD include the establishment of permanent consultative committees, adopting a shared understanding of disability, addressing intersectionality and structural barriers, and utilizing non-ableist participation methods so that a diverse range of perspectives are incorporated and lived experiences shape the policies that impact them. 

Keywords


  1. Shikako K, Lencucha R, Hunt M, et al. How did governments address the needs of people with disabilities during the COVID-19 pandemic? An analysis of 14 countries' policies based on the UN convention on the rights of persons with disabilities. Int J Health Policy Manag. 2023;12:7111. doi:34172/ijhpm.2023.7111
  2. Njelesani J, Siegel J, Ullrich E. Realization of the rights of persons with disabilities in Rwanda. PLoS One. 2018;13(5):e0196347. doi:1371/journal.pone.0196347
  3. Njelesani J, Cameron C, Njelesani D, Jamali M, Andrion JJ, Munthali A. Recognizing the rights of children with disabilities in Malawi. Disabil Soc. 2024. doi:1080/09687599.2024.2379338
  4. Rivas C, Tomomatsu I, Gough D. The many faces of disability in evidence for policy and practice: embracing complexity. Evid Policy. 2021;17(2):191-208. doi:1332/174426421x16147909420727
  5. Njelesani J, Mlambo V, Denekew T, Hunleth J. Inclusion of children with disabilities in qualitative health research: a scoping review. PLoS One. 2022;17(9):e0273784. doi:1371/journal.pone.0273784
  6. Njelesani J, Hunleth J. Youth participatory research evidence to inform health policy: a systematic review protocol. BMJ Open. 2020;10(8):e036522. doi:1136/bmjopen-2019-036522
  7. Gesser M, Block P, Nuernberg AH. Participation, agency and disability in Brazil: transforming psychological practices into public policy from a human rights perspective. Disability and the Global South. 2019;6(2):1772-1791.
  8. Ahlers KP, Ayers KB, Iadarola S, Hughes RB, Lee HS, Williamson HJ. Adapting participatory action research to include individuals with intellectual and developmental disabilities during the COVID-19 global pandemic. Dev Disabil Netw J. 2021;1(2):5. doi:26077/ec55-409c
  9. Robinson S, Valentine K, Idle J. Disability and family violence prevention: a case study on participation in evidence making. Evid Policy. 2021;17(2):315-333. doi:1332/174426421x16143457505305
  10. Metz A, Boaz A, Robert G. Co-creative approaches to knowledge production: what next for bridging the research to practice gap? Evid Policy. 2019;15(3):331-337. doi:1332/174426419x15623193264226
  11. Cappa C, Petrowski N, Njelesani J. Navigating the landscape of child disability measurement: a review of available data collection instruments. Alter. 2015;9(4):317-330. doi:1016/j.alter.2015.08.001
  12. Cappa C, Njelesani J, Neil N, Maladwala A. Measuring environmental factors and school participation for children with disabilities. Int J Disabil Dev Educ. 2023;70(7):1312-1327. doi:1080/1034912x.2021.1959021
  13. Bickenbach JE, Chatterji S, Badley EM, Ustün TB. Models of disablement, universalism and the international classification of impairments, disabilities and handicaps. Soc Sci Med. 1999;48(9):1173-1187. doi:1016/s0277-9536(98)00441-9
  14. Jones CT. "Wounds of regret": critical reflections on competence, "professional intuition," and informed consent in research with intellectually disabled people. Disabil Stud Q. 2021;41(2). doi:18061/dsq.v41i2.6869
  15. Meltzer A, Dickinson H, Malbon E, Carey G. Why is lived experience important for market stewardship? A proposed framework for why and how lived experience should be included in stewarding disability markets. Evid Policy. 2021;17(2):335-347. doi:1332/174426421x16142714946996

Articles in Press, Corrected Proof
Available Online from 04 January 2025
  • Receive Date: 11 July 2024
  • Revise Date: 11 December 2024
  • Accept Date: 01 January 2025
  • First Publish Date: 04 January 2025