Prioritizing the Journey and the Destination; Comment on “Achieving Diagnostic Excellence: Roadmaps to Develop and Use Patient-Reported Measures With an Equity Lens”

Document Type : Commentary

Authors

Independent Researcher, Alexandria, VA, USA

Abstract

McDonald and colleagues’ paper on “Achieving Diagnostic Excellence: Roadmaps to Develop and Use Patient-Reported Measures With an Equity Lens” describes seven goals for using patient-reported measures (PRMs) to promote diagnostic excellence and describes roadmaps to plan the development and implementation of PRMs. Incorporating more patient voices into diagnostic measurement and measure development can improve the patient-centricity of processes and outcomes. Additionally, organizations beginning their measure development journeys may find road-mapping tools helpful, especially the focus on setting goals and engaging stakeholders. However, the authors do not offer suggestions for prioritizing measure concepts for development, and the long timeframes of the examples may dissuade some organizations from engaging in measurement to begin with. Real-world examples of measure development processes and potential applications of emerging technologies are important complements to aspirational roadmap goals and processes.

Keywords


  1. Advancing Measurement of Diagnostic Excellence for Better Healthcare - Materials. Qualityforum.org. https://www.qualityforum.org/ProjectMaterials.aspx?projectID=98290. Published 2023. Accessed November 15, 2024.
  2. McDonald KM, Gleason KT, Jajodia A, Haskell H, Dukhanin V. Achieving Diagnostic Excellence: Roadmaps to Develop and Use Patient-Reported Measures With an Equity Lens. Int J Health Policy Manag. 2024;13:8048. doi:34172/ijhpm.8048
  3. Schmidt T, Valuck T, Perkins B, et al. Improving patient-reported measures in oncology: a payer call to action. J Manag Care Spec Pharm. 2021;27(1):118-126. doi:18553/jmcp.2020.20313
  4. Quality ID #495 (CBE 3665): Ambulatory Palliative Care Patients' Experience of Feeling Heard and Understood. Quality Payment Program. https://qpp.cms.gov/docs/QPP_quality_measure_specifications/CQM-Measures/2024_Measure_495_MIPSCQM.pdf. Accessed November 15, 2024.
  5. MMS Blueprint Measure Lifecycle QuickStart. https://mmshub.cms.gov/sites/default/files/Quickstart.pdf. Accessed November 15, 2024.
  6. Person and Family Engagement in Quality Measurement. https://mmshub.cms.gov/sites/default/files/Person-and-Family-Engagement.pdf. Published 2023. Accessed February 18, 2025.
  7. PFCCpartners, Discern Health. 2020 PFA Summit on Measure Development: Bringing Patients and Families to the Table. https://www.pcori.org/sites/default/files/PFCC-PFA-Summit-Summary.pdf. Published 2020. Accessed February 18, 2025.
  8. Supplemental Material to the CMS Measures Management System (MMS) Hub Patient-Reported Outcome Measures. 2022. https://mmshub.cms.gov/sites/default/files/Patient-Reported-Outcome-Measures.pdf. Accessed November 15, 2024.
  9. Hibbard JH, Stockard J, Mahoney ER, Tusler M. Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res. 2004;39(4 Pt 1):1005-1026. doi:1111/j.1475-6773.2004.00269.x
  10. Hibbard JH, Greene J, Tusler M. Improving the outcomes of disease management by tailoring care to the patient's level of activation. Am J Manag Care. 2009;15(6):353-360.
  11. Quality Positioning SystemTM. https://www.qualityforum.org/QPS/2483. Accessed November 15, 2024.
  12. Federal Register. Medicare and Medicaid Programs; CY 2024 Payment Policies Under the Physician Fee Schedule and Other Changes to Part B Payment and Coverage Policies; Medicare Shared Savings Program Requirements; Medicare Advantage; Medicare and Medicaid Provider and Supplier Enrollment Policies; and Basic Health Program. https://www.federalregister.gov/documents/2023/11/16/2023-24184/medicare-and-medicaid-programs-cy-2024-payment-policies-under-the-physician-fee-schedule-and-other. Accessed November 15, 2024.
  13. Perella C, Steenackers M, Robbins B, et al. Patient experience of Sjögren's disease and its multifaceted impact on patients' lives. Rheumatol Ther. 2023;10(3):601-614. doi:1007/s40744-023-00531-7
  • Receive Date: 16 November 2024
  • Revise Date: 18 February 2025
  • Accept Date: 24 February 2025
  • First Publish Date: 26 February 2025